Biobanking expertise

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HRA publishes new proportionate consent guidance

By Emma Lawrence | February 1, 2017

The Health Research Authority (HRA) have published new guidance on taking a proportionate approach to consent, particularly in reference to clinical trials.

Only a minority of biobanks have a publicly available access policy

By Emma Lawrence | January 20, 2017

A recent study has found that only around 9% of biobanks have a publicly available access policy. Given that most biobanks are funded by the public, there is an expectation that the samples they contain are made available for external research purposes that could ultimately have a social benefit. But for this to happen, clear[…]

Spotlight on: Gautam Mehta

By Emma Lawrence | December 23, 2016

Name: Gautam Mehta Job title: Honorary Consultant and Senior Lecturer, UCL Research Project: Gautam is exploring new ways to treat patients with liver failure and alcohol-related liver disease. Liver disease is the third commonest cause of preventable death in the UK and rates are rising rapidly, therefore new treatments are urgently needed. Gautam’s research involves[…]

Proposed changes to data security and consent in the healthcare system

By Emma Lawrence | November 25, 2016

Proposed changes to data security and consent in the healthcare system In September 2015, the Secretary of State for Health commissioned an intensive review of how personal data is used within the healthcare system. This called for recommendations to be made on improving data security and developing a new, clear opt-out and consent model for[…]

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Spotlight on: Ana Rio-Machin

By Emma Lawrence | July 20, 2016

Spotlight on: Ana Rio-Machin Job title: Postdoctoral Researcher at Barts Cancer Institute (BCI), Queen Mary University of London Research Project: Ana researches the genetic alterations (mutations) that are inherited in families who have leukaemia without a known cause, within a Bloodwise funded programme; ‘Acute Myeloid Leukaemia (AML) familial cases, where two or more affected individuals[…]

Biobanking expertise: Accreditation

Accreditation

By Philip Quinlan | June 8, 2016

Accreditation Review of the CCB’s pilot audit scheme Background Biobanking is recognised as a critical area requiring development if progress is to be made in identifying clinically useful markers of disease and disease progression, discovering new drug targets and understanding the mechanisms of disease in cancer. Researchers continue to report that they are unable to[…]

Biobanking expertise: Access Template

Access Template

By Philip Quinlan | June 8, 2016

Access Template The access policy could be one of the most important documents that you as a Biobank will create as it will define so much of the interactions you are likely to have with researchers. Starting from scratch can be a daunting process, but luckily, the NCRI have created a template document. It sets[…]

Biobanking expertise: Personas

Personas

By Philip Quinlan | June 8, 2016

User Personas We have been undertaking a review of the different stakeholders in Biobanking to understand how different people may interact with our biobank directory. This work was undertaken by the user-experience team at the University of Nottingham and the outputs are below to be viewed. These are generalisations but useful for us to understand[…]