Spotlight On – Phil Quinlan
In our latest blog post we meet our Director, Phil Quinlan, to find out more about his role and future work at the UKCRC TDCC.
Category: Biobanking Basics
This blog series looks to give information about why the donation of samples is vital and the different ways samples can be donated.
The national data opt-out
The national data opt-out In order to make the samples you donate really useful for research, Biobanks need to link them to data about you. Recently there has been changes to the control you have over this data. We talk to Alison Stone and Chris Carrigan from the patient movement use MY data to find[…]
Spotlight On – Matt Styles
Spotlight on: Matt Styles In our latest blog post we meet software developer, Matt Styles, to find out more about his role and future work at the UKCRC TDCC. What is your role within the UKCRC TDCC and what does it involve? My job title is formally ‘Senior Research Developer’, though I’ll admit to not[…]
Spotlight on: Emma Lawrence
Spotlight on: Emma Lawrence In our latest blog post we meet Engagement Manager, Research, Dr Emma Lawrence to find out more about her role and future work at the UKCRC Tissue Directory and Coordination Centre (UKCRC TDCC). What is your role and what does it involve? My job title is Engagement Manager for Research. It’s[…]
The immortal life of Henrietta Lacks
The immortal life of Henrietta Lacks Today, samples donated for medical research are anonymised so that any work performed on them cannot be traced back to the donor. But donation for research has not always worked like this. In 1951, tumour cells from a patient in the USA were grown and sent all over the[…]
Cost recovery in Biobanking
Cost recovery in Biobanking When patients donate samples for research they do so with goodwill as a gift to research. So why is there sometimes reference to ‘the cost of samples?’ We explain more about the use of Cost recovery in Biobanking in our latest blog. How can tissue cost money when it is donated[…]
Spotlight on: Gautam Mehta
Name: Gautam Mehta Job title: Honorary Consultant and Senior Lecturer, UCL Research Project: Gautam is exploring new ways to treat patients with liver failure and alcohol-related liver disease. Liver disease is the third commonest cause of preventable death in the UK and rates are rising rapidly, therefore new treatments are urgently needed. Gautam’s research involves[…]
Proposed changes to data security and consent in the healthcare system
Proposed changes to data security and consent in the healthcare system In September 2015, the Secretary of State for Health commissioned an intensive review of how personal data is used within the healthcare system. This called for recommendations to be made on improving data security and developing a new, clear opt-out and consent model for[…]